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PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA

EDM (Early Day Motion) 601: tabled on 27 January 2009

Tabled in the 2008-09 session.

This motion has been signed by 37 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House welcomes the Government's decision to nationally commission services for the treatment of the ultra-orphan disease Paroxysmal Nocturnal Haemoglobinuria (PNH); acknowledges that without treatment with eculizumab patients with this chronic life threatening disease are left only with the options of recurrent blood transfusions and, in a small number, bone marrow transplant; and congratulates the PNH Alliance of clinicians, industry and patients who are working to ensure PNH services continue to improve patient outcomes.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Austin, John
Labour
Signed on 9 February 2009
Erith and Thamesmead
Bottomley, Sir Peter
Conservative
Signed on 28 January 2009
Worthing West
Caton, Mr Martin
Labour
Signed on 28 January 2009
Gower
Clapham, Mr Michael
Labour
Signed on 24 February 2009
Barnsley West and Penistone
Cook, Frank
Labour
Signed on 23 February 2009
Stockton North
Corbyn, Jeremy
Labour
Signed on 28 January 2009
Islington North
Cryer, Mrs Ann
Labour
Signed on 2 February 2009
Keighley
Dismore, Mr Andrew
Labour
Signed on 28 January 2009
Hendon
Dobbin, Jim
Labour
Signed on 28 January 2009
Heywood and Middleton
Dobson, Frank
Labour
Signed on 23 February 2009
Holborn and St Pancras
Dodds, Mr Nigel
Democratic Unionist Party
Signed on 3 March 2009
Belfast North
Etherington, Bill
Labour
Signed on 4 February 2009
Sunderland North
Hancock, Mr Mike
Liberal Democrat
Signed on 2 February 2009
Portsmouth South
Harvey, Nick
Liberal Democrat
Signed on 29 January 2009
North Devon
Hughes, Simon
Liberal Democrat
Signed on 4 February 2009
North Southwark and Bermondsey
Jenkins, Mr Brian
Labour
Signed on 24 February 2009
Tamworth
Jones, Lynne
Labour
Signed on 28 January 2009
Birmingham, Selly Oak
Leech, Mr John
Liberal Democrat
Signed on 28 January 2009
Manchester, Withington
MacNeil, Mr Angus
Scottish National Party
Signed on 28 January 2009
Na h-Eileanan an Iar
McDonnell, John
Labour
Signed on 27 February 2009
Hayes and Harlington
Prentice, Mr Gordon
Labour
Signed on 28 January 2009
Pendle
Robinson, Mrs Iris
Democratic Unionist Party
Signed on 16 March 2009
Strangford
Russell, Bob
Liberal Democrat
Signed on 24 February 2009
Colchester
Simpson, Alan
Labour
Signed on 28 January 2009
Nottingham South
Turner, Dr Desmond
Labour
Signed on 28 January 2009
Brighton, Kemptown
Vis, Dr Rudi
Labour
Signed on 4 February 2009
Finchley and Golders Green
Williams, Mrs Betty
Labour
Signed on 4 February 2009
Conwy
Williams, Mr Roger
Liberal Democrat
Signed on 5 February 2009
Brecon and Radnorshire
Willis, Mr Phil
Liberal Democrat
Signed on 28 January 2009
Harrogate and Knaresborough
Willott, Jenny
Liberal Democrat
Signed on 6 March 2009
Cardiff Central

These members had previously signed the motion, but have now withdrawn their support. The date shown is when the Member withdrew their signature from the motion.