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RARE DISEASE DAY 2009

EDM (Early Day Motion) 914: tabled on 26 February 2009

Tabled in the 2008-09 session.

This motion has been signed by 108 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House acknowledges the second Pan-European Rare Disease Day on 28 February 2009, which successfully highlights rare diseases and the challenges faced by patients, carers, healthcare professionals and policy makers, working to ensure the highest quality of services and available treatments are accessible to often isolated and vulnerable people; notes that there are over 6,000 rare conditions identified, affecting more than 3.5 million people in the UK; further notes that 75 per cent. of those with a rare condition are children and 30 per cent. die before the age of five years; welcomes the newly-established campaign Rare Disease UK; and urges the Government to move forward with the European Commission's Communciation to create a National Plan for rare diseases.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Abbott, Ms Diane
Labour
Signed on 26 March 2009
Hackney North and Stoke Newington
Alexander, Danny
Liberal Democrat
Signed on 3 March 2009
Inverness, Nairn, Badenoch and Strathspey
Ancram, Mr Michael
Conservative
Signed on 19 March 2009
Devizes
Anderson, Mr David
Labour
Signed on 9 March 2009
Blaydon
Austin, John
Labour
Signed on 3 March 2009
Erith and Thamesmead
Baker, Norman
Liberal Democrat
Signed on 25 March 2009
Lewes
Baldry, Tony
Conservative
Signed on 17 March 2009
Banbury
Begg, Dame Anne
Labour
Signed on 2 March 2009
Aberdeen South
Beith, Sir Alan
Liberal Democrat
Signed on 5 May 2009
Berwick-upon-Tweed
Berry, Dr Roger
Labour
Signed on 25 March 2009
Kingswood
Bone, Mr Peter
Conservative
Signed on 6 May 2009
Wellingborough
Borrow, Mr David S.
Labour
Signed on 9 March 2009
South Ribble
Boswell, Mr Tim
Conservative
Signed on 2 March 2009
Daventry
Bottomley, Sir Peter
Conservative
Signed on 27 February 2009
Worthing West
Brake, Tom
Liberal Democrat
Signed on 21 April 2009
Carshalton and Wallington
Campbell, Mr Gregory
Democratic Unionist Party
Signed on 3 March 2009
East Londonderry
Campbell, Mr Ronnie
Labour
Signed on 4 March 2009
Blyth Valley
Caton, Mr Martin
Labour
Signed on 3 March 2009
Gower
Clarke, Mr Tom
Labour
Signed on 4 March 2009
Coatbridge, Chryston and Bellshill
Cook, Frank
Labour
Signed on 12 March 2009
Stockton North
Corbyn, Jeremy
Labour
Signed on 3 March 2009
Islington North
Cryer, Mrs Ann
Labour
Signed on 2 March 2009
Keighley
Cunningham, Mr Jim
Labour
Signed on 25 March 2009
Coventry South
Curry, Mr David
Conservative
Signed on 19 March 2009
Skipton and Ripon
Dean, Mrs Janet
Labour
Signed on 10 March 2009
Burton
Devine, Jim
Labour
Signed on 2 March 2009
Livingston
Dismore, Mr Andrew
Labour
Signed on 27 February 2009
Hendon
Dobbin, Jim
Labour
Signed on 3 March 2009
Heywood and Middleton
Dodds, Mr Nigel
Democratic Unionist Party
Signed on 4 March 2009
Belfast North
Dowd, Jim
Labour
Signed on 12 March 2009
Lewisham West
Drew, Mr David
Labour
Signed on 3 March 2009
Stroud
Etherington, Bill
Labour
Signed on 23 April 2009
Sunderland North
Farron, Tim
Liberal Democrat
Signed on 18 March 2009
Westmorland and Lonsdale
Featherstone, Lynne
Liberal Democrat
Signed on 29 April 2009
Hornsey and Wood Green
Flynn, Paul
Labour
Signed on 2 March 2009
Newport West
George, Andrew
Liberal Democrat
Signed on 2 March 2009
St Ives
Gerrard, Mr Neil
Labour
Signed on 9 March 2009
Walthamstow
Godsiff, Mr Roger
Labour
Signed on 10 March 2009
Birmingham, Sparkbrook and Small Heath
Hancock, Mr Mike
Liberal Democrat
Signed on 3 March 2009
Portsmouth South
Harvey, Nick
Liberal Democrat
Signed on 26 March 2009
North Devon
Heyes, David
Labour
Signed on 3 March 2009
Ashton-under-Lyne
Hoey, Kate
Labour
Signed on 19 March 2009
Vauxhall
Howells, Dr Kim
Labour
Signed on 2 April 2009
Pontypridd
Hoyle, Mr Lindsay
Labour
Signed on 2 March 2009
Chorley
Hunter, Mark
Liberal Democrat
Signed on 27 February 2009
Cheadle
Iddon, Dr Brian
Labour
Signed on 2 March 2009
Bolton South East
Jenkins, Mr Brian
Labour
Signed on 10 March 2009
Tamworth
Jones, Lynne
Labour
Signed on 27 February 2009
Birmingham, Selly Oak
Kennedy, Mr Charles
Liberal Democrat
Signed on 27 March 2009
Ross, Skye and Lochaber
Key, Robert
Conservative
Signed on 18 March 2009
Salisbury
Kramer, Susan
Liberal Democrat
Signed on 10 March 2009
Richmond Park
Lamb, Norman
Liberal Democrat
Signed on 21 April 2009
North Norfolk
Laws, Mr David
Liberal Democrat
Signed on 31 March 2009
Yeovil
Leech, Mr John
Liberal Democrat
Signed on 3 March 2009
Manchester, Withington
Lepper, David
Labour
Signed on 2 March 2009
Brighton, Pavilion
Linton, Martin
Labour
Signed on 24 March 2009
Battersea
Lloyd, Tony
Labour
Signed on 5 March 2009
Manchester Central
Mackay, Mr Andrew
Conservative
Signed on 11 March 2009
Bracknell
Malins, Mr Humfrey
Conservative
Signed on 1 June 2009
Woking
Marsden, Mr Gordon
Labour
Signed on 18 March 2009
Blackpool South
McCafferty, Chris
Labour
Signed on 4 March 2009
Calder Valley
McCrea, Rev Dr William
Democratic Unionist Party
Signed on 4 March 2009
South Antrim
McDonnell, John
Labour
Signed on 27 February 2009
Hayes and Harlington
Meale, Mr Alan
Labour
Signed on 2 March 2009
Mansfield
Moffatt, Laura
Labour
Signed on 3 March 2009
Crawley
Mulholland, Greg
Liberal Democrat
Signed on 6 March 2009
Leeds North West
Naysmith, Dr Doug
Labour
Signed on 4 March 2009
Bristol North West
O'Hara, Mr Edward
Labour
Signed on 3 March 2009
Knowsley South
Öpik, Lembit
Liberal Democrat
Signed on 19 March 2009
Montgomeryshire
Ottaway, Richard
Conservative
Signed on 17 March 2009
Croydon South
Pelling, Mr Andrew
Independent
Signed on 30 March 2009
Croydon Central
Prentice, Mr Gordon
Labour
Signed on 3 March 2009
Pendle
Price, Adam
Plaid Cymru
Signed on 13 March 2009
Carmarthen East and Dinefwr
Rennie, Willie
Liberal Democrat
Signed on 19 March 2009
Dunfermline and West Fife
Riordan, Mrs Linda
Labour
Signed on 25 March 2009
Halifax
Robinson, Mrs Iris
Democratic Unionist Party
Signed on 16 March 2009
Strangford
Rogerson, Dan
Liberal Democrat
Signed on 4 March 2009
North Cornwall
Rowen, Paul
Liberal Democrat
Signed on 9 March 2009
Rochdale
Roy, Lindsay
Labour
Signed on 11 March 2009
Glenrothes
Sanders, Mr Adrian
Liberal Democrat
Signed on 12 March 2009
Torbay
Scott, Mr Lee
Conservative
Signed on 27 February 2009
Ilford North
Simpson, Alan
Labour
Signed on 4 March 2009
Nottingham South
Smith, Sir Robert
Liberal Democrat
Signed on 23 March 2009
West Aberdeenshire and Kincardine
Soames, Hon Nicholas
Conservative
Signed on 25 March 2009
Mid Sussex
Starkey, Dr Phyllis
Labour
Signed on 5 May 2009
Milton Keynes South West
Stewart, Ian
Labour
Signed on 12 May 2009
Eccles
Streeter, Mr Gary
Conservative
Signed on 18 March 2009
South West Devon
Swinson, Jo
Liberal Democrat
Signed on 22 April 2009
East Dunbartonshire
Taylor, Ms Dari
Labour
Signed on 6 March 2009
Stockton South
Todd, Mr Mark
Labour
Signed on 12 March 2009
South Derbyshire
Truswell, Mr Paul
Labour
Signed on 2 March 2009
Pudsey
Turner, Dr Desmond
Labour
Signed on 2 March 2009
Brighton, Kemptown
Vis, Dr Rudi
Labour
Signed on 3 March 2009
Finchley and Golders Green
Wareing, Mr Robert N.
Independent
Signed on 2 March 2009
Liverpool, West Derby
Williams, Mrs Betty
Labour
Signed on 9 March 2009
Conwy
Williams, Mark
Liberal Democrat
Signed on 10 March 2009
Ceredigion
Williams, Mr Roger
Liberal Democrat
Signed on 19 March 2009
Brecon and Radnorshire
Williams, Stephen
Liberal Democrat
Signed on 3 March 2009
Bristol West
Willis, Mr Phil
Liberal Democrat
Signed on 4 March 2009
Harrogate and Knaresborough
Willott, Jenny
Liberal Democrat
Signed on 7 May 2009
Cardiff Central