Skip to main content


EDM (Early Day Motion) 202: tabled on 10 June 2010

Tabled in the 2010-12 session.

This motion has been signed by 14 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House calls on the NHS London Specialised Commissioning Group to carry out an in-depth review of specialised neuromuscular services in the region; notes that there are almost 9,000 people living in the London NHS region affected by muscular dystrophy and related neuromuscular conditions; further notes that the London Muscle Group, a coalition of local families, health professionals and experts in these conditions supported by the Muscular Dystrophy Campaign is backing calls for a review; further notes that eight of the 10 English NHS regions have either completed or are currently conducting a review; is concerned that there is only one Neuromuscular Care Adviser in the London region providing invaluable support to families living with these rare and very rare conditions; further notes that neuromuscular care advisers provide cost-effective care by helping to save consultant time and, as part of a multidisciplinary team, help to prevent expensive and traumatic emergency hospital admissions for this group of patients; and calls on the Government to urge the Specialised Commissioning Group to follow the lead of other regions and embark on a review to ensure that all families living with muscle disease in London have access to specialist multidisciplinary care which improves quality of life and increases life expectancy.