Skip to main content

DUCHENNE MUSCULAR DYSTROPHY

EDM (Early Day Motion) 206: tabled on 10 June 2010

Tabled in the 2010-12 session.

This motion has been signed by 42 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House commends the work of charity Action Duchenne in highlighting the need to deliver care levels that will extend by up to 15 years the lives of children living with the severe muscle-wasting disease Duchenne Muscular Dystrophy; endorses the recently agreed International Standards of Care guidelines for Duchenne published in the Lancet Neurology in March 2010; supports Duchenne families who are calling on the Government to ensure that levels of care for these vulnerable children are not cut in the forthcoming spending review; believes that recommendations in the new guidelines for multi-disciplinary care for Duchenne patients should be implemented for all, irrespective of where they live; and further believes that further funding should be made available to continue research and development of new medicines to cure this devastating condition.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Brooke, Annette
Liberal Democrat
Signed on 16 June 2010
Mid Dorset and North Poole
Bryant, Chris
Labour
Signed on 16 June 2010
Rhondda
Campbell, Mr Gregory
Democratic Unionist Party
Signed on 16 June 2010
East Londonderry
Campbell, Mr Ronnie
Labour
Signed on 16 June 2010
Blyth Valley
Caton, Martin
Labour
Signed on 16 June 2010
Gower
Clarke, Mr Tom
Labour
Signed on 16 June 2010
Coatbridge, Chryston and Bellshill
Crausby, Mr David
Labour
Signed on 29 June 2010
Bolton North East
Dodds, Mr Nigel
Democratic Unionist Party
Signed on 22 June 2010
Belfast North
Donaldson, Mr Jeffrey M.
Democratic Unionist Party
Signed on 21 June 2010
Lagan Valley
Edwards, Jonathan
Plaid Cymru
Signed on 15 June 2010
Carmarthen East and Dinefwr
Evans, Chris
Labour
Signed on 5 July 2010
Islwyn
Francis, Dr Hywel
Labour
Signed on 16 June 2010
Aberavon
George, Andrew
Liberal Democrat
Signed on 14 June 2010
St Ives
Hamilton, Fabian
Labour
Signed on 6 September 2010
Leeds North East
Hancock, Mr Mike
Liberal Democrat
Signed on 16 June 2010
Portsmouth South
Hermon, Lady Sylvia
Independent
Signed on 12 July 2010
North Down
Heyes, David
Labour
Signed on 5 July 2010
Ashton-under-Lyne
Hodgson, Mrs Sharon
Labour
Signed on 17 June 2010
Washington and Sunderland West
Jackson, Glenda
Labour
Signed on 16 June 2010
Hampstead and Kilburn
Jones, Graham
Labour
Signed on 27 July 2010
Hyndburn
Lavery, Ian
Labour
Signed on 22 June 2010
Wansbeck
Leech, Mr John
Liberal Democrat
Signed on 14 June 2010
Manchester, Withington
McCrea, Dr William
Democratic Unionist Party
Signed on 15 June 2010
South Antrim
McDonnell, John
Labour
Signed on 29 June 2010
Hayes and Harlington
Meale, Mr Alan
Labour
Signed on 28 June 2010
Mansfield
Michael, Alun
Labour
Signed on 21 June 2010
Cardiff South and Penarth
Nandy, Lisa
Labour
Signed on 21 July 2010
Wigan
Owen, Albert
Labour
Signed on 22 June 2010
Ynys Môn
Pearce, Teresa
Labour
Signed on 22 June 2010
Erith and Thamesmead
Riordan, Mrs Linda
Labour
Signed on 27 July 2010
Halifax
Simpson, David
Democratic Unionist Party
Signed on 16 June 2010
Upper Bann
Skinner, Mr Dennis
Labour
Signed on 17 June 2010
Bolsover
Stringer, Graham
Labour
Signed on 15 June 2010
Blackley and Broughton
Weir, Mr Mike
Scottish National Party
Signed on 16 June 2010
Angus
Williams, Mr Mark
Liberal Democrat
Signed on 17 June 2010
Ceredigion

These members had previously signed the motion, but have now withdrawn their support. The date shown is when the Member withdrew their signature from the motion.