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INTERNATIONAL THALASSAEMIA DAY 2012

EDM (Early Day Motion) 29: tabled on 09 May 2012

Tabled in the 2012-13 session.

This motion has been signed by 24 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House celebrates International Thalassaemia Day on 8 May 2012; recognises the importance of the day in raising global awareness of thalassaemia; agrees with the key theme that thalassaemia patients and affected communities should have access to approproprate information on this condition; notes that although thalassaemia is a serious, lifelong medical condition, with modern medical treatment it is manageable; welcomes the improvements that have been made in the UK in the treatment of and screening for thalassaemia; but expresses concern that access to screening and the care received by patients is still variable; and calls on the Government to continue improving services and the availability of information for patients with this rare condition.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

These members had previously signed the motion, but have now withdrawn their support. The date shown is when the Member withdrew their signature from the motion.