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MUSCULAR DYSTROPHY CAMPAIGN NATIONAL PATIENT SURVEY

EDM (Early Day Motion) 992: tabled on 30 January 2013

Tabled in the 2012-13 session.

This motion has been signed by 40 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House welcomes the publication of the Muscular Dystrophy Campaign's 2013 National Patient Survey report State of the Nation which finds that patients with rare diseases are being put at serious risk of misdiagnosis, and fatal cardiac and respiratory problems are going unmonitored; notes the report's findings revealing major delays in receiving vital checkups owing to a complete inconsistency in NHS care and support for people with muscular dystrophy and related neuromuscular conditions; is concerned that this can lead to costly unplanned admissions to hospital which could be avoided; acknowledges the findings of the audit of unplanned emergency admissions led by Professor Michael Hanna; further notes the need for the lead for neuromuscular services to continue in post after April 2013; calls on the Government to ensure that the NHS Commissioning Board implements new NHS guidelines contained in service specification for neuromuscular services; and further calls on the NHS Commissioning Board to support the development of operational delivery networks for neuromuscular services with a view towards reducing costly unplanned emergency admissions.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Betts, Mr Clive
Labour
Signed on 27 February 2013
Sheffield South East
Brady, Mr Graham
Conservative
Signed on 26 February 2013
Altrincham and Sale West
Champion, Sarah
Labour
Signed on 11 February 2013
Rotherham
Corbyn, Jeremy
Labour
Signed on 6 February 2013
Islington North
Crausby, Mr David
Labour
Signed on 14 March 2013
Bolton North East
Cunningham, Mr Jim
Labour
Signed on 11 February 2013
Coventry South
Dodds, Mr Nigel
Democratic Unionist Party
Signed on 13 February 2013
Belfast North
Durkan, Mark
Social Democratic & Labour Party
Signed on 4 February 2013
Foyle
Flynn, Paul
Labour
Signed on 7 February 2013
Newport West
Francis, Dr Hywel
Labour
Signed on 5 February 2013
Aberavon
Galloway, Mr George
Respect
Signed on 6 February 2013
Bradford West
Hancock, Mr Mike
Liberal Democrat
Signed on 5 February 2013
Portsmouth South
Hermon, Lady
Independent
Signed on 26 February 2013
North Down
Hopkins, Kelvin
Labour
Signed on 4 February 2013
Luton North
Huppert, Dr Julian
Liberal Democrat
Signed on 11 February 2013
Cambridge
Lavery, Ian
Labour
Signed on 7 February 2013
Wansbeck
Leech, Mr John
Liberal Democrat
Signed on 12 February 2013
Manchester, Withington
Llwyd, Mr Elfyn
Plaid Cymru
Signed on 5 February 2013
Dwyfor Meirionnydd
McCabe, Steve
Labour
Signed on 5 February 2013
Birmingham, Selly Oak
McCrea, Dr William
Democratic Unionist Party
Signed on 6 February 2013
South Antrim
McDonnell, John
Labour
Signed on 5 February 2013
Hayes and Harlington
McGovern, Jim
Labour
Signed on 10 February 2013
Dundee West
Miller, Andrew
Labour
Signed on 11 March 2013
Ellesmere Port and Neston
Murphy, Paul
Labour
Signed on 7 February 2013
Torfaen
Osborne, Sandra
Labour
Signed on 7 February 2013
Ayr, Carrick and Cumnock
Pugh, John
Liberal Democrat
Signed on 7 March 2013
Southport
Qureshi, Yasmin
Labour
Signed on 27 February 2013
Bolton South East
Reckless, Mark
Conservative
Signed on 7 February 2013
Rochester and Strood
Riordan, Mrs Linda
Labour
Signed on 14 February 2013
Halifax
Rogerson, Dan
Liberal Democrat
Signed on 11 February 2013
North Cornwall
Roy, Lindsay
Labour
Signed on 12 February 2013
Glenrothes
Shannon, Jim
Democratic Unionist Party
Signed on 5 February 2013
Strangford
Skinner, Mr Dennis
Labour
Signed on 12 February 2013
Bolsover
Williams, Mr Mark
Liberal Democrat
Signed on 6 February 2013
Ceredigion

There are no withdrawn signatures for this motion.