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CONGENITAL DIAPHRAGMATIC HERNIA

EDM (Early Day Motion) 1252: tabled on 26 March 2013

Tabled in the 2012-13 session.

This motion has been signed by 10 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House recognises that the birth defect congenital diaphragmatic hernia (CDH), which is as common as cystic fibrosis but much less known, can affect any unborn child, requiring additional antenatal care plus intensive care and treatment of the affected newborn; regrets that only 50 per cent of babies diagnosed with CDH survive, whilst those that do survive endure ongoing medical problems ranging from asthma and feeding problems to chronic lung and digestive problems, developmental delays and oxygen dependency; acknowledges that there is no known cause or prevention for the condition and that treatment remains medically challenging and costly; congratulates CDH UK for the work it does to raise a awareness of the condition and support families facing diagnosis; and calls on the Government to provide funding to progress research into the causes of CDH, with a view to identifying the developing prevention strategies and better treatment of the condition, which could save lives and potentially reduce costs to the NHS in the long term and to work with the devolved administrations to develop expertise and share knowledge on the condition throughout the UK.