NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House welcomes the report of the All Party Parliamentary Group on Muscular Dystrophy on newborn screening for Duchenne muscular dystrophy; acknowledges the support provided by the Muscular Dystrophy Campaign in drawing attention to these important issues; notes that with potential treatments for the condition in or entering clinical trial, planning must begin now for a newborn screening programme; further notes the significant advances in genetic medicine that have taken place in recent years; and calls on the National Screening Committee to reflect these advances by updating its appraisal criteria for newborn screening programmes.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

EDM (Early Day Motion) 1305: tabled on 30 April 2014

Motion text

Signatures (34)