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ACCESS TO TRANSLARNA THROUGH THE NHS

EDM (Early Day Motion) 639: tabled on 17 December 2014

Tabled in the 2014-15 session.

This motion has been signed by 32 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House is deeply concerned at the decision of NHS England to halt its assessment of the Duchenne muscular dystrophy treatment, Translarna, whilst it reconsiders how it assesses new treatments; understands that Translarna, which received conditional approval from the European Commission (EC) in July 2014, is the first drug to treat an underlying genetic cause of Duchenne muscular dystrophy; notes that under the terms of the EC's conditional approval Translarna would be made available to boys whose Duchenne is caused by a nonsense mutation, who are over five and can still walk; further notes that NHS England has taken its decision at a very late stage of the assessment process; acknowledges the deep concern of families at this delay, who fear that it could prevent their sons from accessing Translarna before they lose the ability to walk; and joins the calls of the Muscular Dystrophy Campaign for NHS England to take emergency steps to ensure that Translarna is made available to the children it could help by April 2015.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Betts, Mr Clive
Labour
Signed on 13 January 2015
Sheffield South East
Campbell, Mr Ronnie
Labour
Signed on 7 January 2015
Blyth Valley
Caton, Martin
Labour
Signed on 6 January 2015
Gower
Connarty, Michael
Labour
Signed on 13 January 2015
Linlithgow and East Falkirk
Corbyn, Jeremy
Labour
Signed on 18 December 2014
Islington North
Crausby, Mr David
Labour
Signed on 6 January 2015
Bolton North East
Donaldson, Mr Jeffrey M.
Democratic Unionist Party
Signed on 7 January 2015
Lagan Valley
Durkan, Mark
Social Democratic & Labour Party
Signed on 5 January 2015
Foyle
Flynn, Paul
Labour
Signed on 5 January 2015
Newport West
Galloway, Mr George
Respect
Signed on 11 February 2015
Bradford West
Glindon, Mrs Mary
Labour
Signed on 18 December 2014
North Tyneside
Hood, Mr Jim
Labour
Signed on 19 January 2015
Lanark and Hamilton East
Hopkins, Kelvin
Labour
Signed on 6 January 2015
Luton North
Leech, Mr John
Liberal Democrat
Signed on 8 January 2015
Manchester, Withington
McCrea, Dr William
Democratic Unionist Party
Signed on 6 January 2015
South Antrim
McDonnell, John
Labour
Signed on 6 January 2015
Hayes and Harlington
Meale, Sir Alan
Labour
Signed on 6 January 2015
Mansfield
Miller, Andrew
Labour
Signed on 7 January 2015
Ellesmere Port and Neston
O'Donnell, Fiona
Labour
Signed on 28 January 2015
East Lothian
Osborne, Sandra
Labour
Signed on 13 January 2015
Ayr, Carrick and Cumnock
Ritchie, Ms Margaret
Social Democratic & Labour Party
Signed on 6 January 2015
South Down
Shannon, Jim
Democratic Unionist Party
Signed on 6 January 2015
Strangford
Sharma, Mr Virendra
Labour
Signed on 6 January 2015
Ealing, Southall
Simpson, David
Democratic Unionist Party
Signed on 7 January 2015
Upper Bann
Stringer, Graham
Labour
Signed on 12 January 2015
Blackley and Broughton
Ward, Mr David
Liberal Democrat
Signed on 6 January 2015
Bradford East

There are no withdrawn signatures for this motion.