House of Commons
As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.
ACCESS TO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, TUBEROUS SCLEROSIS AND MORQUIO DISEASE
EDM #819
Tabled 25 February 2015
2014-15 Session
That this House is aware that the pause in NHS England's decision-making process on prioritisation and specialised commissioning has created a block to accessing effective medicines for rare diseases where there are commissioning policies under development or assessment; notes that for conditions such as Duchenne muscular dystrophy, tuberous sclerosis and Morquio disease, where a cohort of more than five patients exists, there is no alternative viable route to NHS funding; further notes that as a result patients with need of treatment are left at risk of significant harm, including organ failure and avoidable death; also notes that around 180 patients with Duchenne muscular dystrophy, tuberous sclerosis and Morquio disease are currently being denied access; believes it is unethical to place patients at risk as a result of process inefficiencies; and calls on the Government to bring into force, without delay, interim measures to provide children and adults with rare diseases access to vital and proven medicines that will prevent organ deterioration and premature death.

Signatures (63)

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.
In addition to the sponsors, the following Members have signed to support the motion.
Anderson, Mr David
Labour
25 February 2015
Barron, Kevin
Labour
03 March 2015
Betts, Mr Clive
Labour
11 March 2015
Blunkett, Mr David
Labour
16 March 2015
Bottomley, Sir Peter
Conservative
27 February 2015
Brooke, Annette
Liberal Democrat
26 February 2015
Campbell, Sir Menzies
Liberal Democrat
10 March 2015
Carmichael, Neil
Conservative
09 March 2015
Caton, Martin
Labour
04 March 2015
Champion, Sarah
Labour
24 March 2015
Corbyn, Jeremy
Labour
04 March 2015
Crausby, Mr David
Labour
04 March 2015
Cunningham, Mr Jim
Labour
17 March 2015
Davies, Geraint
Labour
23 March 2015
Davies, Philip
Conservative
27 February 2015
Dodds, Mr Nigel
Democratic Unionist Party
12 March 2015
Donaldson, Mr Jeffrey M.
Democratic Unionist Party
09 March 2015
Edwards, Jonathan
Plaid Cymru
10 March 2015
Farrelly, Paul
Labour
09 March 2015
Galloway, Mr George
Respect
06 March 2015
Glindon, Mrs Mary
Labour
04 March 2015
Godsiff, Mr Roger
Labour
04 March 2015
Hermon, Lady
Independent
04 March 2015
Hopkins, Kelvin
Labour
26 February 2015
Howarth, Mr George
Labour
27 February 2015
Hunter, Mark
Liberal Democrat
03 March 2015
Huppert, Dr Julian
Liberal Democrat
09 March 2015
Jackson, Glenda
Labour
26 February 2015
Kaufman, Sir Gerald
Labour
17 March 2015
Knight, Sir Greg
Conservative
04 March 2015
Leech, Mr John
Liberal Democrat
26 February 2015
Llwyd, Mr Elfyn
Plaid Cymru
05 March 2015
Lucas, Caroline
Green Party
03 March 2015
Main, Mrs Anne
Conservative
12 March 2015
McCrea, Dr William
Democratic Unionist Party
04 March 2015
McDonnell, John
Labour
03 March 2015
McInnes, Liz
Labour
04 March 2015
Meale, Sir Alan
Labour
03 March 2015
Mearns, Ian
Labour
02 March 2015
Morris, Grahame M.
Labour
09 March 2015
Osborne, Sandra
Labour
04 March 2015
Qureshi, Yasmin
Labour
05 March 2015
Ritchie, Ms Margaret
Social Democratic & Labour Party
03 March 2015
Robertson, John
Labour
09 March 2015
Rotheram, Steve
Labour
27 February 2015
Ruddock, Dame Joan
Labour
03 March 2015
Sanders, Mr Adrian
Liberal Democrat
04 March 2015
Shannon, Jim
Democratic Unionist Party
09 March 2015
Sharma, Mr Virendra
Labour
04 March 2015
Sheerman, Mr Barry
Labour
09 March 2015
Simpson, David
Democratic Unionist Party
09 March 2015
Stringer, Graham
Labour
03 March 2015
Ward, Mr David
Liberal Democrat
04 March 2015
Whittingdale, Mr John
Conservative
24 March 2015
Williamson, Chris
Labour
18 March 2015
Wood, Mike
Labour
16 March 2015
Wright, David
Labour
02 March 2015
There are no withdrawn signatures for this Motion