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HYPERMOBILITY SYNDROMES AWARENESS WEEK

EDM (Early Day Motion) 1131: tabled on 24 February 2016

Tabled in the 2015-16 session.

This motion has been signed by 30 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House welcomes the first Hypermobility Syndromes Awareness Week campaign organised by the Hypermobility Syndromes Association (HMSA), taking place from 22 to 29 February 2016, which encourages earlier recognition and diagnosis and needs-led interventions; notes that around 1.5 million people in the UK are affected by a hypermobility syndrome, but that 55 per cent of people take 10 years to reach a diagnosis, impacting on not just physical health but on relationships, education and work opportunities and potentially increasing socio-economic dependency; further notes that hypermobility syndromes can be rare, genetic, and potentially life-threatening; is concerned that there is a lack of specialist services in the UK and that services which are available are fragmented and difficult to access when needed; notes that late or lack of diagnosis increases the burden on health and social services due to repeat presentations for complex and multi-systemic issues which may be avoidable with earlier intervention; understands the importance of earlier diagnosis and access to treatment in promoting people's physical health and mental wellbeing; encourages hon. Members to raise awareness of HMSA's website www.hypermobility.org, which has information and signposting advice to help people understand their conditions; and congratulates HMSA, which is primarily run by volunteers with one of the hypermobility syndromes, for organising Hypermobility Syndromes Awareness Week and its other important work.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Ahmed-Sheikh, Ms Tasmina
Scottish National Party
Signed on 1 March 2016
Ochil and South Perthshire
Amess, Sir David
Conservative
Signed on 21 March 2016
Southend West
Bardell, Hannah
Scottish National Party
Signed on 1 March 2016
Livingston
Boswell, Philip
Scottish National Party
Signed on 1 March 2016
Coatbridge, Chryston and Bellshill
Cameron, Dr Lisa
Scottish National Party
Signed on 1 March 2016
East Kilbride, Strathaven and Lesmahagow
Cherry, Joanna
Scottish National Party
Signed on 21 March 2016
Edinburgh South West
Durkan, Mark
Social Democratic & Labour Party
Signed on 1 March 2016
Foyle
Hendry, Drew
Scottish National Party
Signed on 3 March 2016
Inverness, Nairn, Badenoch and Strathspey
Hermon, Lady
Independent
Signed on 1 March 2016
North Down
Kerr, Calum
Scottish National Party
Signed on 1 March 2016
Berwickshire, Roxburgh and Selkirk
MacNeil, Angus Brendan
Scottish National Party
Signed on 29 February 2016
Na h-Eileanan an Iar
Meale, Sir Alan
Labour
Signed on 1 March 2016
Mansfield
Mearns, Ian
Labour
Signed on 3 March 2016
Gateshead
Newlands, Gavin
Scottish National Party
Signed on 1 March 2016
Paisley and Renfrewshire North
Nicolson, John
Scottish National Party
Signed on 8 March 2016
East Dunbartonshire
Paterson, Steven
Scottish National Party
Signed on 29 February 2016
Stirling
Qureshi, Yasmin
Labour
Signed on 18 April 2016
Bolton South East
Ritchie, Ms Margaret
Social Democratic & Labour Party
Signed on 1 March 2016
South Down
Shannon, Jim
Democratic Unionist Party
Signed on 29 February 2016
Strangford
Sheppard, Tommy
Scottish National Party
Signed on 9 March 2016
Edinburgh East
Simpson, David
Democratic Unionist Party
Signed on 1 March 2016
Upper Bann
Streeter, Mr Gary
Conservative
Signed on 8 March 2016
South West Devon
Timms, Stephen
Labour
Signed on 29 February 2016
East Ham
Wilson, Corri
Scottish National Party
Signed on 11 April 2016
Ayr, Carrick and Cumnock

There are no withdrawn signatures for this motion.