Skip to main content

APPROVAL FOR DUCHENNE MUSCULAR DYSTROPHY TREATMENT, TRANSLARNA

EDM (Early Day Motion) 1382: tabled on 18 April 2016

Tabled in the 2015-16 session.

This motion has been signed by 28 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House welcomes the decision by the National Institute for Health and Care Excellence (NICE) to recommend the Duchenne muscular dystrophy treatment, Translarna, for funding by NHS England, as a result of a Managed Access Agreement; notes that Translarna is the first ever approved drug to treat an underlying genetic cause of Duchenne muscular dystrophy; recognises the tireless campaigning by patients and families throughout the NHS England and NICE processes calling for access to Translarna; acknowledges the vital role that Muscular Dystrophy UK and Action Duchenne have played as patient organisation stakeholders during the NICE assessment process; further recognises the role of other charities in pressing for access to Translarna; further notes with concern the announcement by the Scottish Medicines Consortium to recommend that Translarna not be approved for funding by NHS Scotland; and calls on NHS England to shorten implementation from three months so that the drug is available as quickly as possible.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Amess, Sir David
Conservative
Signed on 20 April 2016
Southend West
Betts, Mr Clive
Labour
Signed on 20 April 2016
Sheffield South East
Blackman, Bob
Conservative
Signed on 21 April 2016
Harrow East
Campbell, Mr Ronnie
Labour
Signed on 19 April 2016
Blyth Valley
Cooper, Rosie
Labour
Signed on 26 April 2016
West Lancashire
Crausby, Mr David
Labour
Signed on 27 April 2016
Bolton North East
Godsiff, Mr Roger
Labour
Signed on 25 April 2016
Birmingham, Hall Green
Hayes, Helen
Labour
Signed on 20 April 2016
Dulwich and West Norwood
Hermon, Lady
Independent
Signed on 20 April 2016
North Down
Hopkins, Kelvin
Labour
Signed on 20 April 2016
Luton North
Howarth, Sir Gerald
Conservative
Signed on 28 April 2016
Aldershot
Kinahan, Danny
Ulster Unionist Party
Signed on 25 April 2016
South Antrim
Mactaggart, Fiona
Labour
Signed on 25 April 2016
Slough
McDonnell, Dr Alasdair
Social Democratic & Labour Party
Signed on 21 April 2016
Belfast South
Meale, Sir Alan
Labour
Signed on 25 April 2016
Mansfield
Mearns, Ian
Labour
Signed on 20 April 2016
Gateshead
Monaghan, Dr Paul
Scottish National Party
Signed on 25 April 2016
Caithness, Sutherland and Easter Ross
Mulholland, Greg
Liberal Democrat
Signed on 19 April 2016
Leeds North West
Sharma, Mr Virendra
Labour
Signed on 26 April 2016
Ealing, Southall
Simpson, David
Democratic Unionist Party
Signed on 20 April 2016
Upper Bann
Stephens, Chris
Scottish National Party
Signed on 20 April 2016
Glasgow South West
Streeter, Mr Gary
Conservative
Signed on 25 April 2016
South West Devon

There are no withdrawn signatures for this motion.