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HUNTINGTON'S DISEASE

EDM (Early Day Motion) 508: tabled on 10 October 2016

Tabled in the 2016-17 session.

This motion has been signed by 23 Members. It has not yet had any amendments submitted.

As this motion is using historical data, we may not have the record of the original ordering, in which case signatories are listed alphabetically.

Motion text

That this House notes that Huntington's disease is a rare neuropsychiatric illness that is hereditary, with the child of an affected parent having a 50 per cent chance of inheriting the mutant gene; further notes that Huntington's disease affects 12 people out of every 100,000 in the UK, which equates to over 7,600 people across the country; also notes that while some symptoms such as involuntary movement can be responded to with medication such as anti-depressants, there is no effective treatment or any cure for the disease; praises the work of the Huntington's Disease Association in supporting families across the country, including through providing Specialist Huntington's Disease Advisers in every county; notes that the Huntington's Disease Association also provides training and education to health and social care professionals due to the rarity and complexity of the condition; welcomes the work being undertaken through the UK Strategy for Rare Diseases to improve the lives of all those with rare diseases and their families; also welcomes the establishment of the Rare Diseases Translational Research Collaboration to support discoveries and research on rare diseases such as Huntington's disease; notes that the Huntington's Disease Association has called on the National Institute for Health and Care Excellence (NICE) to develop guidelines for treating the disease; calls on NICE therefore to look at developing such guidelines so that the care of patients with the disease can be further improved; and further calls on the Government to do what it can to encourage the development of such guidelines.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

There are no withdrawn signatures for this motion.