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EDM (Early Day Motion) 1490: tabled on 05 July 2018

Tabled in the 2017-19 session.

This motion has been signed by 4 Members. It has not yet had any amendments submitted.

Motion text

That this House notes the urgent need to institute a national screening and surveillance programme for people suffering from Li-Fraumeni Syndrome (LFS); further notes that this rare genetic condition predisposes sufferers to cancer development; notes that for affected individuals the lifetime risk of developing one or more cancers exceeds 90 per cent; recognises that there is no treatment for (LFS) and that early detection of cancer offers people with (LFS) the best chance of successful treatment; notes that an international panel of experts has recommended a screening protocol for children and adults; understands that the implementation of such a protocol in the NHS requires funding at local or national level; therefore calls on the Government to make funding available to this under-served population; and urges additional research in (LFS), including the possibility of germ-line testing of all children with cancer in order to increase the early detection of this and other genetic cancer predispositions.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

There are no withdrawn signatures for this motion.