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DIFFUSE INTRINSIC PONTINE GLIOMA AWARENESS DAY 17 MAY

EDM (Early Day Motion) 2356: tabled on 01 May 2019

Tabled in the 2017-19 session.

This motion has been signed by 64 Members. It has not yet had any amendments submitted.

Motion text

That this House recognises that diffuse intrinsic pontine glioma (DIPG) is the second most common type of primary, high-grade brain tumour in children and affects around 40 children in the UK each year; further recognises that early DIPG symptoms include vision issues, partial facial paralysis, balance problems and frequent headaches or nausea and that later symptoms include inability to walk, talk and swallow; believes that, due to the location of the tumour, DIPG is not amenable to surgery, that the radiotherapy offered in the UK is for palliative purposes only and that median survival post-diagnosis is nine months with just 10 per cent of children affected surviving for longer than two years after diagnosis; notes that the prognosis has not improved for children with DIPG in more than 40 years; further notes that there is a severe lack of funding for research of DIPG with a fraction of cancer research funding going towards paediatric brain tumours; welcomes the research and work undertaken by organisations such as the Brain Tumour Charity and the Institute of Cancer Research; calls on the Government to increase funding for researching DIPG to further improve and enhance recognition and treatment of this devastating illness; acknowledges that more than 20 US states officially recognise 17 May as DIPG awareness day; and further believes that the recognition of the day in the UK would be an important step in supporting families and moving towards funding more effective treatments.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Murray, Ian
Labour
Signed on 7 May 2019
Edinburgh South
Penning, Sir Mike
Conservative
Signed on 8 May 2019
Hemel Hempstead
Hayes, Helen
Labour
Signed on 8 May 2019
Dulwich and West Norwood
Sobel, Alex
Labour
Signed on 8 May 2019
Leeds North West
George, Ruth
Labour
Signed on 9 May 2019
High Peak
Godsiff, Mr Roger
Labour
Signed on 9 May 2019
Birmingham, Hall Green
Linden, David
Scottish National Party
Signed on 9 May 2019
Glasgow East
Glindon, Mary
Labour
Signed on 9 May 2019
North Tyneside
Streeting, Wes
Labour
Signed on 10 May 2019
Ilford North
Campbell, Mr Ronnie
Labour
Signed on 13 May 2019
Blyth Valley
Kerr, Stephen
Conservative
Signed on 13 May 2019
Stirling
Cameron, Dr Lisa
Scottish National Party
Signed on 13 May 2019
East Kilbride, Strathaven and Lesmahagow
Antoniazzi, Tonia
Labour
Signed on 13 May 2019
Gower
Brock, Deidre
Scottish National Party
Signed on 13 May 2019
Edinburgh North and Leith
Aldous, Peter
Conservative
Signed on 14 May 2019
Waveney
Davies, Philip
Conservative
Signed on 14 May 2019
Shipley
Hill, Mike
Labour
Signed on 14 May 2019
Hartlepool
Daby, Janet
Labour
Signed on 15 May 2019
Lewisham East
Day, Martyn
Scottish National Party
Signed on 15 May 2019
Linlithgow and East Falkirk
Gaffney, Hugh
Labour
Signed on 16 May 2019
Coatbridge, Chryston and Bellshill
Grant, Bill
Conservative
Signed on 16 May 2019
Ayr, Carrick and Cumnock
Law, Chris
Scottish National Party
Signed on 17 May 2019
Dundee West
Chapman, Douglas
Scottish National Party
Signed on 17 May 2019
Dunfermline and West Fife
McDonald, Stuart C.
Scottish National Party
Signed on 19 May 2019
Cumbernauld, Kilsyth and Kirkintilloch East
Monaghan, Carol
Scottish National Party
Signed on 20 May 2019
Glasgow North West
Field, Frank
Independent
Signed on 20 May 2019
Birkenhead
Pearce, Teresa
Labour
Signed on 21 May 2019
Erith and Thamesmead
O'Hara, Brendan
Scottish National Party
Signed on 21 May 2019
Argyll and Bute
Morris, Grahame
Labour
Signed on 21 May 2019
Easington
Hermon, Lady
Independent
Signed on 21 May 2019
North Down
Ellman, Dame Louise
Labour
Signed on 22 May 2019
Liverpool, Riverside
Thewliss, Alison
Scottish National Party
Signed on 22 May 2019
Glasgow Central
Gill, Preet Kaur
Labour
Signed on 22 May 2019
Birmingham, Edgbaston
Williamson, Chris
Independent
Signed on 28 May 2019
Derby North
Jones, Ruth
Labour
Signed on 29 May 2019
Newport West
Cooper, Rosie
Labour
Signed on 31 May 2019
West Lancashire
Wilson, Sammy
Democratic Unionist Party
Signed on 4 June 2019
East Antrim
Stringer, Graham
Labour
Signed on 4 June 2019
Blackley and Broughton
McDonagh, Siobhain
Labour
Signed on 4 June 2019
Mitcham and Morden
Swinson, Jo
Liberal Democrat
Signed on 4 June 2019
East Dunbartonshire
Gethins, Stephen
Scottish National Party
Signed on 5 June 2019
North East Fife
Lake, Ben
Plaid Cymru
Signed on 5 June 2019
Ceredigion
Brown, Alan
Scottish National Party
Signed on 6 June 2019
Kilmarnock and Loudoun
Fellows, Marion
Scottish National Party
Signed on 10 June 2019
Motherwell and Wishaw
Hosie, Stewart
Scottish National Party
Signed on 11 June 2019
Dundee East
Newlands, Gavin
Scottish National Party
Signed on 11 June 2019
Paisley and Renfrewshire North
Sheppard, Tommy
Scottish National Party
Signed on 11 June 2019
Edinburgh East
Hendry, Drew
Scottish National Party
Signed on 11 June 2019
Inverness, Nairn, Badenoch and Strathspey
Whitford, Dr Philippa
Scottish National Party
Signed on 13 June 2019
Central Ayrshire
Wishart, Pete
Scottish National Party
Signed on 13 June 2019
Perth and North Perthshire
Hopkins, Kelvin
Independent
Signed on 17 June 2019
Luton North
Robinson, Gavin
Democratic Unionist Party
Signed on 18 June 2019
Belfast East
Black, Mhairi
Scottish National Party
Signed on 19 June 2019
Paisley and Renfrewshire South
Bailey, Mr Adrian
Labour
Signed on 19 June 2019
West Bromwich West
Little Pengelly, Emma
Democratic Unionist Party
Signed on 21 June 2019
Belfast South
MacNeil, Angus Brendan
Scottish National Party
Signed on 25 June 2019
Na h-Eileanan an Iar
Sheerman, Mr Barry
Labour
Signed on 2 July 2019
Huddersfield
Grant, Peter
Scottish National Party
Signed on 18 July 2019
Glenrothes

There are no withdrawn signatures for this motion.