House of Commons
DIFFUSE INTRINSIC PONTINE GLIOMA AWARENESS DAY 17 MAY
EDM #2356
Tabled 01 May 2019
2017-19 Session
That this House recognises that diffuse intrinsic pontine glioma (DIPG) is the second most common type of primary, high-grade brain tumour in children and affects around 40 children in the UK each year; further recognises that early DIPG symptoms include vision issues, partial facial paralysis, balance problems and frequent headaches or nausea and that later symptoms include inability to walk, talk and swallow; believes that, due to the location of the tumour, DIPG is not amenable to surgery, that the radiotherapy offered in the UK is for palliative purposes only and that median survival post-diagnosis is nine months with just 10 per cent of children affected surviving for longer than two years after diagnosis; notes that the prognosis has not improved for children with DIPG in more than 40 years; further notes that there is a severe lack of funding for research of DIPG with a fraction of cancer research funding going towards paediatric brain tumours; welcomes the research and work undertaken by organisations such as the Brain Tumour Charity and the Institute of Cancer Research; calls on the Government to increase funding for researching DIPG to further improve and enhance recognition and treatment of this devastating illness; acknowledges that more than 20 US states officially recognise 17 May as DIPG awareness day; and further believes that the recognition of the day in the UK would be an important step in supporting families and moving towards funding more effective treatments.

Signatures (64)

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.
In addition to the sponsors, the following Members have signed to support the motion.
Murray, Ian
Labour
07 May 2019
Penning, Sir Mike
Conservative
08 May 2019
Hayes, Helen
Labour
08 May 2019
Sobel, Alex
Labour
08 May 2019
George, Ruth
Labour
09 May 2019
Godsiff, Mr Roger
Labour
09 May 2019
Linden, David
Scottish National Party
09 May 2019
Glindon, Mary
Labour
09 May 2019
Streeting, Wes
Labour
10 May 2019
Campbell, Mr Ronnie
Labour
13 May 2019
Kerr, Stephen
Conservative
13 May 2019
Cameron, Dr Lisa
Scottish National Party
13 May 2019
Antoniazzi, Tonia
Labour
13 May 2019
Brock, Deidre
Scottish National Party
13 May 2019
Aldous, Peter
Conservative
14 May 2019
Davies, Philip
Conservative
14 May 2019
Hill, Mike
Labour
14 May 2019
Daby, Janet
Labour
15 May 2019
Day, Martyn
Scottish National Party
15 May 2019
Gaffney, Hugh
Labour
16 May 2019
Grant, Bill
Conservative
16 May 2019
Law, Chris
Scottish National Party
17 May 2019
Chapman, Douglas
Scottish National Party
17 May 2019
McDonald, Stuart C.
Scottish National Party
19 May 2019
Monaghan, Carol
Scottish National Party
20 May 2019
Field, Frank
Independent
20 May 2019
Pearce, Teresa
Labour
21 May 2019
O'Hara, Brendan
Scottish National Party
21 May 2019
Morris, Grahame
Labour
21 May 2019
Hermon, Lady
Independent
21 May 2019
Ellman, Dame Louise
Labour
22 May 2019
Thewliss, Alison
Scottish National Party
22 May 2019
Gill, Preet Kaur
Labour
22 May 2019
Williamson, Chris
Independent
28 May 2019
Jones, Ruth
Labour
29 May 2019
Cooper, Rosie
Labour
31 May 2019
Wilson, Sammy
Democratic Unionist Party
04 June 2019
Stringer, Graham
Labour
04 June 2019
McDonagh, Siobhain
Labour
04 June 2019
Swinson, Jo
Liberal Democrat
04 June 2019
Gethins, Stephen
Scottish National Party
05 June 2019
Lake, Ben
Plaid Cymru
05 June 2019
Brown, Alan
Scottish National Party
06 June 2019
Fellows, Marion
Scottish National Party
10 June 2019
Hosie, Stewart
Scottish National Party
11 June 2019
Newlands, Gavin
Scottish National Party
11 June 2019
Sheppard, Tommy
Scottish National Party
11 June 2019
Hendry, Drew
Scottish National Party
11 June 2019
Whitford, Dr Philippa
Scottish National Party
13 June 2019
Wishart, Pete
Scottish National Party
13 June 2019
Hopkins, Kelvin
Independent
17 June 2019
Robinson, Gavin
Democratic Unionist Party
18 June 2019
Black, Mhairi
Scottish National Party
19 June 2019
Bailey, Mr Adrian
Labour
19 June 2019
Little Pengelly, Emma
Democratic Unionist Party
21 June 2019
MacNeil, Angus Brendan
Scottish National Party
25 June 2019
Sheerman, Mr Barry
Labour
02 July 2019
Grant, Peter
Scottish National Party
18 July 2019
There are no withdrawn signatures for this Motion