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Access to Cystic Fibrosis drug Kaftrio

EDM (Early Day Motion) 1448: tabled on 04 February 2021

Tabled in the 2019-21 session.

This motion has been signed by 30 Members. It has not yet had any amendments submitted.

Motion text

That this House welcomes the landmark deal secured by the NHS in June 2020 which permitted the licensing of Cystic Fibrosis (CF) drug Kaftrio to a large number of people with CF aged 12 years and over in the UK; recognises the life-changing effect of access to this new drug for CF patients in the UK eligible for prescription; however notes with concern that the deal secured by NHS England excludes many CF patients with specific gene mutations because England is the only nation awaiting approval of the European Medicines Agency (EMA) for its use by patients with additional mutations; further notes the disparity between England and the devolved nations since Northern Ireland, Scotland and Wales have granted access for CF patients with additional mutations approved by the US Food and Drug Administration; acknowledges that the alternative pathways offered to patients by NHS England whilst they await EMA approval such as applications on compassionate grounds or individual funding are often time-consuming and ineffective; and urges NHS England to bring eligibility criteria into line with the devolved nations by granting access without caveat to CF patients with additional gene mutations.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Osborne, Kate
Labour
Signed on 8 February 2021
Jarrow
Ribeiro-Addy, Bell
Labour
Signed on 8 February 2021
Streatham
Corbyn, Jeremy
Independent
Signed on 8 February 2021
Islington North
Gwynne, Andrew
Labour
Signed on 5 February 2021
Denton and Reddish
McDonnell, John
Labour
Signed on 5 February 2021
Hayes and Harlington
Fellows, Marion
Scottish National Party
Signed on 8 February 2021
Motherwell and Wishaw
Dorans, Allan
Scottish National Party
Signed on 8 February 2021
Ayr, Carrick and Cumnock
Sultana, Zarah
Labour
Signed on 8 February 2021
Coventry South
Long Bailey, Rebecca
Labour
Signed on 8 February 2021
Salford and Eccles
Whitley, Mick
Labour
Signed on 8 February 2021
Birkenhead
Webbe, Claudia
Independent
Signed on 8 February 2021
Leicester East
Lavery, Ian
Labour
Signed on 8 February 2021
Wansbeck
Barker, Paula
Labour
Signed on 8 February 2021
Liverpool, Wavertree
Girvan, Paul
Democratic Unionist Party
Signed on 8 February 2021
South Antrim
Hayes, Helen
Labour
Signed on 8 February 2021
Dulwich and West Norwood
Stephens, Chris
Scottish National Party
Signed on 8 February 2021
Glasgow South West
Winter, Beth
Labour
Signed on 10 February 2021
Cynon Valley
Eastwood, Colum
Social Democratic & Labour Party
Signed on 10 February 2021
Foyle
Yasin, Mohammad
Labour
Signed on 11 February 2021
Bedford
Burgon, Richard
Labour
Signed on 11 February 2021
Leeds East
Wilson, Sammy
Democratic Unionist Party
Signed on 11 February 2021
East Antrim
Hobhouse, Wera
Liberal Democrat
Signed on 11 February 2021
Bath
Farron, Tim
Liberal Democrat
Signed on 15 February 2021
Westmorland and Lonsdale
Russell-Moyle, Lloyd
Labour
Signed on 11 May 2021
Brighton, Kemptown

There are no withdrawn signatures for this motion.