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Families of children with extremely rare chromosome and gene disorders

EDM (Early Day Motion) 264: tabled on 30 June 2021

Tabled in the 2021-22 session.

This motion has been signed by 27 Members. It has not yet had any amendments submitted.

Motion text

That this House recognises the challenges faced by parents of children with unique or extremely rare chromosome and gene disorders in receiving tailored medical care and locating support groups specific to their situation, as well as in being able to know what to expect or gauge against; commends the work of Unique, whose database helps to track down and pair families with extremely rare chromosome and gene disorders; notes that Unique was founded in 1984 by Edna Knight after two of her four daughters were born with a rare chromosomal disorder; and welcomes significant progress in recent years in helping families overcome diagnostic obstacles through DNA sequencing.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Cameron, Dr Lisa
Scottish National Party
Signed on 1 July 2021
East Kilbride, Strathaven and Lesmahagow
McDonald, Stuart C
Scottish National Party
Signed on 1 July 2021
Cumbernauld, Kilsyth and Kirkintilloch East
O'Hara, Brendan
Scottish National Party
Signed on 1 July 2021
Argyll and Bute
Doogan, Dave
Scottish National Party
Signed on 1 July 2021
Angus
Whitford, Dr Philippa
Scottish National Party
Signed on 1 July 2021
Central Ayrshire
Newlands, Gavin
Scottish National Party
Signed on 1 July 2021
Paisley and Renfrewshire North
Fellows, Marion
Scottish National Party
Signed on 1 July 2021
Motherwell and Wishaw
Nicolson, John
Scottish National Party
Signed on 1 July 2021
Ochil and South Perthshire
Dorans, Allan
Scottish National Party
Signed on 1 July 2021
Ayr, Carrick and Cumnock
Grady, Patrick
Scottish National Party
Signed on 1 July 2021
Glasgow North
Hobhouse, Wera
Liberal Democrat
Signed on 1 July 2021
Bath
Edwards, Jonathan
Independent
Signed on 5 July 2021
Carmarthen East and Dinefwr
Callaghan, Amy
Scottish National Party
Signed on 5 July 2021
East Dunbartonshire
Law, Chris
Scottish National Party
Signed on 5 July 2021
Dundee West
Hendry, Drew
Scottish National Party
Signed on 5 July 2021
Inverness, Nairn, Badenoch and Strathspey
Thewliss, Alison
Scottish National Party
Signed on 6 July 2021
Glasgow Central
Jardine, Christine
Liberal Democrat
Signed on 7 July 2021
Edinburgh West
Chapman, Douglas
Scottish National Party
Signed on 7 July 2021
Dunfermline and West Fife
Stephens, Chris
Scottish National Party
Signed on 12 July 2021
Glasgow South West
Mundell, David
Conservative
Signed on 14 July 2021
Dumfriesshire, Clydesdale and Tweeddale
Hanvey, Neale
Alba Party
Signed on 15 July 2021
Kirkcaldy and Cowdenbeath

There are no withdrawn signatures for this motion.