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Health inequalities for patients with sickle cell disease

EDM (Early Day Motion) 1114: tabled on 22 March 2022

Tabled in the 2021-22 session.

This motion has been signed by 21 Members. It has not yet had any amendments submitted.

Motion text

That this House welcomes the All-Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia’s report, No One’s Listening, which highlighted the growing burden of sickle cell disease in the UK; notes that the report revealed a pattern of several years of sub-standard care, stigmatisation and lack of prioritisation which have resulted in deep failings in the care sickle cell patients receive; agrees with the view that severe health inequalities are associated with the long-standing lack of investment in sickle cell research and new medicines; is concerned about delays in the introduction of a health inequalities modifier, which would allow treatments for conditions where inequalities are a concern, such as sickle cell, to be more readily approved, following the conclusion of the National Institute for Health and Care Excellence’s (NICE) methods and processes review; calls on the Government to implement the recommendations of the APPG on Sickle Cell and Thalassaemia’s report in full; and encourages the Government to actively engage with NICE to ensure work on the introduction of a health inequalities modifier is prioritised with clear timelines.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

There are no withdrawn signatures for this motion.