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Specialist Huntington’s Disease Services

EDM (Early Day Motion) 72: tabled on 17 May 2022

Tabled in the 2022-23 session.

This motion has been signed by 61 Members. It has not yet had any amendments submitted.

Motion text

That this House notes that Huntington’s Disease is a rare, hereditary and incurable neurological condition that slowly robs patients of their ability to walk, talk, eat, drink, make decisions and care for themselves; notes that a University of Aberdeen study, published in the Journal of Neurology, highlights that the number of Huntington’s Disease cases in northern Scotland has increased by almost 50 per cent over the last 30 years and understands that there are likely to have been similar increases throughout the rest of the United Kingdom; further notes that the Scottish Huntington’s Association, the Huntington’s Disease Association of Northern Ireland and the Huntington’s Disease Association England and Wales have confirmed that Huntington’s Disease specialist staff are stretched to the limit, having had to deal with a rising number of cases without a commensurate increase in resources, with some areas having no specialist services at all; notes the often intolerable burden placed upon those caring for loved ones with Huntington’s Disease; and calls on health and social care providers throughout the UK to expand specialist Huntington’s Disease services and access to mental health and other essential support in order to help those living with Huntington’s Disease and their families in the community.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Stephens, Chris
Scottish National Party
Signed on 18 May 2022
Glasgow South West
Yasin, Mohammad
Labour
Signed on 19 May 2022
Bedford
Vaz, Valerie
Labour
Signed on 19 May 2022
Walsall South
Cherry, Joanna
Scottish National Party
Signed on 19 May 2022
Edinburgh South West
Ferrier, Margaret
Independent
Signed on 19 May 2022
Rutherglen and Hamilton West
Whitley, Mick
Labour
Signed on 19 May 2022
Birkenhead
MacAskill, Kenny
Alba Party
Signed on 23 May 2022
East Lothian
Johnson, Kim
Labour
Signed on 20 May 2022
Liverpool, Riverside
McDonald, Stewart Malcolm
Scottish National Party
Signed on 23 May 2022
Glasgow South
McDonald, Stuart C
Scottish National Party
Signed on 23 May 2022
Cumbernauld, Kilsyth and Kirkintilloch East
Hardy, Emma
Labour
Signed on 23 May 2022
Kingston upon Hull West and Hessle
Stone, Jamie
Liberal Democrat
Signed on 23 May 2022
Caithness, Sutherland and Easter Ross
Law, Chris
Scottish National Party
Signed on 23 May 2022
Dundee West
MacNeil, Angus Brendan
Scottish National Party
Signed on 23 May 2022
Na h-Eileanan an Iar
Lloyd, Tony
Labour
Signed on 23 May 2022
Rochdale
Dorans, Allan
Scottish National Party
Signed on 23 May 2022
Ayr, Carrick and Cumnock
Chamberlain, Wendy
Liberal Democrat
Signed on 23 May 2022
North East Fife
Cameron, Dr Lisa
Scottish National Party
Signed on 23 May 2022
East Kilbride, Strathaven and Lesmahagow
Brock, Deidre
Scottish National Party
Signed on 23 May 2022
Edinburgh North and Leith
Nicolson, John
Scottish National Party
Signed on 23 May 2022
Ochil and South Perthshire
Hanna, Claire
Social Democratic & Labour Party
Signed on 24 May 2022
Belfast South
Whitford, Dr Philippa
Scottish National Party
Signed on 24 May 2022
Central Ayrshire
Jardine, Christine
Liberal Democrat
Signed on 24 May 2022
Edinburgh West
Hanvey, Neale
Alba Party
Signed on 24 May 2022
Kirkcaldy and Cowdenbeath
Cooper, Daisy
Liberal Democrat
Signed on 24 May 2022
St Albans
Carden, Dan
Labour
Signed on 24 May 2022
Liverpool, Walton
Shannon, Jim
Democratic Unionist Party
Signed on 25 May 2022
Strangford
Farron, Tim
Liberal Democrat
Signed on 26 May 2022
Westmorland and Lonsdale
Olney, Sarah
Liberal Democrat
Signed on 26 May 2022
Richmond Park
McDonnell, John
Labour
Signed on 6 June 2022
Hayes and Harlington
Maskell, Rachael
Labour
Signed on 6 June 2022
York Central
Oswald, Kirsten
Scottish National Party
Signed on 6 June 2022
East Renfrewshire
Lockhart, Carla
Democratic Unionist Party
Signed on 6 June 2022
Upper Bann
Morgan, Helen
Liberal Democrat
Signed on 6 June 2022
North Shropshire
Cooper, Rosie
Labour
Signed on 6 June 2022
West Lancashire
Farry, Stephen
Alliance
Signed on 6 June 2022
North Down
Davey, Ed
Liberal Democrat
Signed on 6 June 2022
Kingston and Surbiton
Mundell, David
Conservative
Signed on 6 June 2022
Dumfriesshire, Clydesdale and Tweeddale
Grady, Patrick
Scottish National Party
Signed on 7 June 2022
Glasgow North
Brown, Alan
Scottish National Party
Signed on 7 June 2022
Kilmarnock and Loudoun
Newlands, Gavin
Scottish National Party
Signed on 8 June 2022
Paisley and Renfrewshire North
Thomson, Richard
Scottish National Party
Signed on 8 June 2022
Gordon
Flynn, Stephen
Scottish National Party
Signed on 8 June 2022
Aberdeen South
McLaughlin, Anne
Scottish National Party
Signed on 8 June 2022
Glasgow North East
Monaghan, Carol
Scottish National Party
Signed on 9 June 2022
Glasgow North West
Lucas, Caroline
Green Party
Signed on 9 June 2022
Brighton, Pavilion
Sheppard, Tommy
Scottish National Party
Signed on 13 June 2022
Edinburgh East
Qaisar, Ms Anum
Scottish National Party
Signed on 15 June 2022
Airdrie and Shotts
David, Wayne
Labour
Signed on 16 June 2022
Caerphilly
Timms, Stephen
Labour
Signed on 24 June 2022
East Ham
Bottomley, Sir Peter
Conservative
Signed on 24 June 2022
Worthing West
Howarth, Sir George
Labour
Signed on 27 June 2022
Knowsley
Burgon, Richard
Labour
Signed on 27 June 2022
Leeds East
Wilson, Sammy
Democratic Unionist Party
Signed on 29 June 2022
East Antrim
Thomas, Gareth
Labour
Signed on 29 June 2022
Harrow West

There are no withdrawn signatures for this motion.