Skip to main content

Osteogenesis Imperfecta National Awareness Month

EDM (Early Day Motion) 169: tabled on 14 June 2022

Tabled in the 2022-23 session.

This motion has been signed by 15 Members. It has not yet had any amendments submitted.

Motion text

That this House recognises the Brittle Bone Society’s campaign to mark the month of May as the National Awareness Month for Osteogenesis Imperfecta (OI); notes that OI is a genetic bone disorder characterised by fragile bones that affects a person from birth; recognises that around 5,000 people across the UK are affected by the condition; celebrates the work of the Brittle Bone Society, who offer a variety of support to those affected, including but not limited to practical assistance; commends the campaign for a National Awareness Month ran by the Brittle Bone Society and its supporters, which will help raise awareness among the general public of the condition; and calls on the Government to back the campaign and officially recognise May as the National Awareness Month for OI.