PANS PANDAS UK Working Group Statement, 24 February 2023

That this House notes the statement dated 24 February 2023 from the PANS PANDAS Working Group aiming at improving standards of care for patients with symptoms of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS); recognises that the working group included representatives of the British Paediatric Neurology Association, the Royal College of Psychiatrists, the Royal College of Paediatrics and Child Health, the Royal College of Nursing, the Royal College of Occupational Therapy, the British Paediatric Allergy Infection and Immunology Group, independent social workers and parents of PANS or PANDAS patients, as well as being supported by NHS England; further notes the recommendation to follow existing international peer-reviewed and published treatment guidelines including considering initial antibiotic treatment; expresses concern that knowledge of these conditions and appropriate treatment is low among medical professional in the UK; further expresses concern that the International Classification of Diseases 11th Revision by the World Health Organisation which recognises PANS PANDAS has not yet been implemented in the UK; and calls on the Government to endorse the PANS PANDAS Working Group guidance, to provide associated diagnostic and treatment guidance to medical professionals, and to publish a timeline for the implementation of WHO ICD-11.