Motion text
That this House celebrates Hereditary Angioedema (HAE) day on Tuesday 16 May 2023; recognises that HAE has a significant impact on patient lives and can cause unpredictable potentially life-threatening attacks; commends the important work patient organisations, such as HAE UK, and leading immunology specialists have done to support and advocate for those living with HAE; applauds the ambition for patients to experience zero swelling episodes or attacks; welcomes the commitments of the Rare Disease Framework to improve health outcomes for rare disease populations; and urges policymakers to recognise the need to increase clinical awareness of rare diseases, prioritise quality of life in treatment guidelines, improve shared decision-making processes, and ensure better access to psychological support.
Signatures (28)
The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.
Brock, Deidre
Scottish National Party
Signed on
5 May 2023
Day, Martyn
Scottish National Party
Signed on
5 May 2023
McDonald, Stewart Malcolm
Scottish National Party
Signed on
10 May 2023
McLaughlin, Anne
Scottish National Party
Signed on
10 May 2023
Dorans, Allan
Scottish National Party
Signed on
10 May 2023
Fellows, Marion
Scottish National Party
Signed on
10 May 2023
In addition to the sponsors, the following Members have signed to support the motion.
Hendry, Drew
Scottish National Party
Signed on
10 May 2023
Shannon, Jim
Democratic Unionist Party
Signed on
10 May 2023
Blackford, Ian
Scottish National Party
Signed on
10 May 2023
Docherty-Hughes, Martin
Scottish National Party
Signed on
10 May 2023
Stephens, Chris
Scottish National Party
Signed on
10 May 2023
Whitford, Dr Philippa
Scottish National Party
Signed on
10 May 2023
Oswald, Kirsten
Scottish National Party
Signed on
10 May 2023
Cherry, Joanna
Scottish National Party
Signed on
10 May 2023
Callaghan, Amy
Scottish National Party
Signed on
11 May 2023
Thewliss, Alison
Scottish National Party
Signed on
11 May 2023
Sheppard, Tommy
Scottish National Party
Signed on
11 May 2023
Law, Chris
Scottish National Party
Signed on
11 May 2023
Newlands, Gavin
Scottish National Party
Signed on
11 May 2023
Williams, Hywel
Plaid Cymru
Signed on
11 May 2023
Lake, Ben
Plaid Cymru
Signed on
11 May 2023
Saville Roberts, Liz
Plaid Cymru
Signed on
11 May 2023
O'Hara, Brendan
Scottish National Party
Signed on
15 May 2023
Gibson, Patricia
Scottish National Party
Signed on
15 May 2023
Nicolson, John
Scottish National Party
Signed on
16 May 2023
Metcalfe, Stephen
Conservative
Signed on
16 May 2023
McDonnell, John
Labour
Signed on
17 May 2023
Maskell, Rachael
Labour
Signed on
22 May 2023
There are no withdrawn signatures for this motion.