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Hereditary angioedema awareness day (No. 2)

EDM (Early Day Motion) 1133: tabled on 09 May 2023

Tabled in the 2022-23 session.

This motion has been signed by 28 Members. It has not yet had any amendments submitted.

Motion text

That this House celebrates Hereditary Angioedema (HAE) day on Tuesday 16 May 2023; recognises that HAE has a significant impact on patient lives and can cause unpredictable potentially life-threatening attacks; commends the important work patient organisations, such as HAE UK, and leading immunology specialists have done to support and advocate for those living with HAE; applauds the ambition for patients to experience zero swelling episodes or attacks; welcomes the commitments of the Rare Disease Framework to improve health outcomes for rare disease populations; and urges policymakers to recognise the need to increase clinical awareness of rare diseases, prioritise quality of life in treatment guidelines, improve shared decision-making processes, and ensure better access to psychological support.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Hendry, Drew
Scottish National Party
Signed on 10 May 2023
Inverness, Nairn, Badenoch and Strathspey
Shannon, Jim
Democratic Unionist Party
Signed on 10 May 2023
Strangford
Blackford, Ian
Scottish National Party
Signed on 10 May 2023
Ross, Skye and Lochaber
Docherty-Hughes, Martin
Scottish National Party
Signed on 10 May 2023
West Dunbartonshire
Stephens, Chris
Scottish National Party
Signed on 10 May 2023
Glasgow South West
Whitford, Dr Philippa
Scottish National Party
Signed on 10 May 2023
Central Ayrshire
Oswald, Kirsten
Scottish National Party
Signed on 10 May 2023
East Renfrewshire
Cherry, Joanna
Scottish National Party
Signed on 10 May 2023
Edinburgh South West
Callaghan, Amy
Scottish National Party
Signed on 11 May 2023
East Dunbartonshire
Thewliss, Alison
Scottish National Party
Signed on 11 May 2023
Glasgow Central
Sheppard, Tommy
Scottish National Party
Signed on 11 May 2023
Edinburgh East
Law, Chris
Scottish National Party
Signed on 11 May 2023
Dundee West
Newlands, Gavin
Scottish National Party
Signed on 11 May 2023
Paisley and Renfrewshire North
Williams, Hywel
Plaid Cymru
Signed on 11 May 2023
Arfon
Lake, Ben
Plaid Cymru
Signed on 11 May 2023
Ceredigion
Saville Roberts, Liz
Plaid Cymru
Signed on 11 May 2023
Dwyfor Meirionnydd
O'Hara, Brendan
Scottish National Party
Signed on 15 May 2023
Argyll and Bute
Gibson, Patricia
Scottish National Party
Signed on 15 May 2023
North Ayrshire and Arran
Nicolson, John
Scottish National Party
Signed on 16 May 2023
Ochil and South Perthshire
Metcalfe, Stephen
Conservative
Signed on 16 May 2023
South Basildon and East Thurrock
McDonnell, John
Labour
Signed on 17 May 2023
Hayes and Harlington
Maskell, Rachael
Labour
Signed on 22 May 2023
York Central

There are no withdrawn signatures for this motion.