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Raising awareness of Rett syndrome

EDM (Early Day Motion) 183: tabled on 11 December 2023

Tabled in the 2023-24 session.

This motion has been signed by 10 Members. It has not yet had any amendments submitted.

Motion text

That this House recognises Rett Syndrome Awareness Month from 1 to 30 October; notes its importance for raising awareness of the rare genetic disorder as the second most common cause of severe disability in women and girls; commends the charitable organisation Rett UK, for their outstanding work in providing information, support and advocacy services for people impacted by the condition across the UK; and recognises the importance of their campaign this Rett Syndrome Awareness Month to inform, educate and engage people who can help improve the lives of people living with Rett Syndrome and their families.