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35th Anniversary of the AT Society

EDM (Early Day Motion) 512: tabled on 06 December 2024

Tabled in the 2024-26 session.

This motion has been signed by 2 Members. It has not yet had any amendments submitted.

Motion text

That this House celebrates the 35th anniversary of the Harpenden-based Ataxia-Telangiectasia society, a charity dedicated to supporting families with AT, a rare and complex genetic disorder, through diagnosis, treatment and the challenges of everyday living; notes that the organisation was originally founded in 1989 by Maureen Poupard, with the help of Professor Malcolm Taylor; further notes the charity’s unique nature in providing both personal support to people with AT and funding research initiatives; highlights the success of its cooperative approach evidenced in the organisation of the world’s first ever conference on Clinical Science in AT, in 2004; commends the work of volunteers, researchers, and the team tirelessly advocating for people with AT; and fundamentally underlines that whilst 35 years is a real achievement, the charity does not want to have to exist but, nonetheless, will continue to fight for children, young people and their families until a cure is found.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

There are no withdrawn signatures for this motion.