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Future of children’s palliative care

EDM (Early Day Motion) 1089: tabled on 22 April 2025

Tabled in the 2024-26 session.

This motion has been signed by 28 Members. It has not yet had any amendments submitted.

Motion text

That this House notes with concern the findings of the report entitled Built to Last? The State of Children’s Palliative Care in 2025, published by Together for Short Lives; recognises that the report reveals a stark postcode lottery in access to high-quality palliative care for seriously ill children across England, particularly in relation to 24/7 end-of-life care at home; expresses alarm that only 19% of Integrated Care Boards currently commission this service on a formal basis; acknowledges that this disparity is driven by workforce shortages, a lack of accountability among NHS bodies and councils and a significant funding shortfall projected to rise to £310 million by 2025-26; welcomes the vital services provided by organisations such as Shooting Star Children’s Hospices in Surrey Heartlands and surrounding areas; and calls on the Government to urgently implement the recommendations of the report by reviewing the funding and planning of children’s palliative care, investing in paediatric nursing bursaries and specialist consultant training, holding Integrated Care Boards and local authorities to account for delivering on existing policy, and committing to a sustainable, long-term funding model for children’s hospices, including the continuation of ringfenced, centrally distributed funding beyond 2025-26.

The first 6 Members who have signed to support the motion are the sponsors. The primary sponsor is generally the person who tabled the motion and has responsibility for it. The date shown is when the Member signed the motion.

In addition to the sponsors, the following Members have signed to support the motion.

Dyke, Sarah
Liberal Democrat
Signed on 23 April 2025
Glastonbury and Somerton
Maguire, Helen
Liberal Democrat
Signed on 23 April 2025
Epsom and Ewell
Morrison, Tom
Liberal Democrat
Signed on 23 April 2025
Cheadle
Jarvis, Liz
Liberal Democrat
Signed on 23 April 2025
Eastleigh
Gordon, Tom
Liberal Democrat
Signed on 23 April 2025
Harrogate and Knaresborough
Jones, Clive
Liberal Democrat
Signed on 23 April 2025
Wokingham
Slade, Vikki
Liberal Democrat
Signed on 23 April 2025
Mid Dorset and North Poole
Darling, Steve
Liberal Democrat
Signed on 23 April 2025
Torbay
George, Andrew
Liberal Democrat
Signed on 23 April 2025
St Ives
Glindon, Mary
Labour
Signed on 25 April 2025
Newcastle upon Tyne East and Wallsend
Morgan, Helen
Liberal Democrat
Signed on 25 April 2025
North Shropshire
MacDonald, Mr Angus
Liberal Democrat
Signed on 28 April 2025
Inverness, Skye and West Ross-shire
Chambers, Dr Danny
Liberal Democrat
Signed on 28 April 2025
Winchester
Dillon, Mr Lee
Liberal Democrat
Signed on 28 April 2025
Newbury
Jardine, Christine
Liberal Democrat
Signed on 1 May 2025
Edinburgh West
Berry, Siân
Green Party
Signed on 2 May 2025
Brighton Pavilion
Chowns, Ellie
Green Party
Signed on 6 May 2025
North Herefordshire
Maskell, Rachael
Labour
Signed on 6 May 2025
York Central
MacCleary, James
Liberal Democrat
Signed on 13 May 2025
Lewes
Ramsay, Adrian
Green Party
Signed on 14 May 2025
Waveney Valley
McDonnell, John
Independent
Signed on 2 June 2025
Hayes and Harlington
Pinkerton, Dr Al
Liberal Democrat
Signed on 2 December 2025
Surrey Heath

There are no withdrawn signatures for this motion.